Wednesday, January 30, 2013

A great explanation

I heard from a good friend an excellent explanation of what it feels like to have Fibro. She said it feels like you have been beaten all over with a hammer-everyday-over and over. That would explain the surface pain and muscle pain but still doesn't adequately describe the deep joint pain. I guess it depends on the force behind the "hammer beatings".
I have been accused of being a drug addict and laying around in a drugged stupor. This person only says this because they would prefer I do illegal drugs like Marijuana. I like to think of a saying I had posted in my room growing up. It said to "never judge a person till you have walked a mile in their moccasins". This saying is so true! You never know what a person is going through till you have been there, so dont even try. I thought about this persons accusations and I realized that the times I get sleepy are not from being overly medicated. It's the days I don't take some of my meds. The pain is so intense I become very tired just from trying to deal with it. Today I did not take my noon meds. I do struggle with fatigue from Fibro (or maybe I have Chronic fatigue) and I mistakenly think if I skip a dose of meds I might have a bit more energy. Today I wanted to get to some sewing after work. Well instead of more energy I was in so much pain I came home and fell asleep. When I woke up the pain was so bad it was difficult to get more than a shallow breath. It was like today's "hammer beating" took place while I was getting my much needed nap. My pain level even with meds is a 5 to 6. I would like a lower pain level but I am too afraid of the fatigue that may accompany it. Even though I have about one day a week that I fall asleep after work, I manage to make it to work 5 days a week and to church 1 day. I have managed with the help of my kids and roommate to keep our house clean. I have cleaned out the entire garage and the spare bedroom. I have since then cleaned out a storage building and filled the garage again but since I have unpacked an entire garage just before this I have faith I will get this one done as well. I had my entire Christmas decor put away by Jan 14th. This is a record for me. It used to take me till February even with help. I even had my friends come for the weekend last weekend. I have been exercising twice a day, and organizing every cupboard and drawer in my house. So in my opinion, I am doing fine, despite the hammer beatings, despite my pain meds that keep me out of ER, despite the cruelty of people who have not walked a mile in my moccasins.

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Saturday, August 27, 2011

Just imagine

Imagine pain that makes your entire legs, from the hips down through your calves, into the bottom of your feet that continues to worsen till you have to lay down.

Imagine pain in your back that feels like you have been shot, and the pain radiates through to the front of your chest as if the bullet broke into millions of fragments and came busting through. 

Imagine it hurts so bad you breath shallow and have to remind yourself to take a deep breath.

Imagine pain that the lightest touch feels like the hardest punch. And a friendly slap in the arm feels like you need a doctor.

Imagine a headache that is like a migraine, and the only thing that helps is a big bag of ice directly on it and an ice mask.

Imagine the pain is so bad you cant think and forget things, sometimes in the middle of a sentence. 

Just imagine......................Fibromyalgia Hurts!




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