Wednesday, January 30, 2013

A great explanation

I heard from a good friend an excellent explanation of what it feels like to have Fibro. She said it feels like you have been beaten all over with a hammer-everyday-over and over. That would explain the surface pain and muscle pain but still doesn't adequately describe the deep joint pain. I guess it depends on the force behind the "hammer beatings".
I have been accused of being a drug addict and laying around in a drugged stupor. This person only says this because they would prefer I do illegal drugs like Marijuana. I like to think of a saying I had posted in my room growing up. It said to "never judge a person till you have walked a mile in their moccasins". This saying is so true! You never know what a person is going through till you have been there, so dont even try. I thought about this persons accusations and I realized that the times I get sleepy are not from being overly medicated. It's the days I don't take some of my meds. The pain is so intense I become very tired just from trying to deal with it. Today I did not take my noon meds. I do struggle with fatigue from Fibro (or maybe I have Chronic fatigue) and I mistakenly think if I skip a dose of meds I might have a bit more energy. Today I wanted to get to some sewing after work. Well instead of more energy I was in so much pain I came home and fell asleep. When I woke up the pain was so bad it was difficult to get more than a shallow breath. It was like today's "hammer beating" took place while I was getting my much needed nap. My pain level even with meds is a 5 to 6. I would like a lower pain level but I am too afraid of the fatigue that may accompany it. Even though I have about one day a week that I fall asleep after work, I manage to make it to work 5 days a week and to church 1 day. I have managed with the help of my kids and roommate to keep our house clean. I have cleaned out the entire garage and the spare bedroom. I have since then cleaned out a storage building and filled the garage again but since I have unpacked an entire garage just before this I have faith I will get this one done as well. I had my entire Christmas decor put away by Jan 14th. This is a record for me. It used to take me till February even with help. I even had my friends come for the weekend last weekend. I have been exercising twice a day, and organizing every cupboard and drawer in my house. So in my opinion, I am doing fine, despite the hammer beatings, despite my pain meds that keep me out of ER, despite the cruelty of people who have not walked a mile in my moccasins.

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Friday, September 2, 2011

Iodine

I recently read a book called "Iodine, why you need it, why you can't live without it" by Dr. David Brownstein. It talks about how 96 percent of people he and his co physicians have tested were deficient in iodine. It includes the function of iodine in the body, case studies and answers questions. I started iodine and after the initial worsening I started feel less pain, more alertness and less fatigue. It has been amazing and each day is better. I am still taking my prescription meds but not having the breakthrough pain. Awesome.
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